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An NIH-Funded Rare Diseases Clinical Research Network Consortium

BDCRC Newsletter

Catch up on the latest updates, opportunities, and upcoming events across the Batten Disease Clinical Research Consortium.

April 2026
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The Batten Disease Clinical Research Consortium (BDCRC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). BDCRC is funded under grant number U54HD122210 as a collaboration between NCATS, the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), and the National Institute of Neurological Disorders and Stroke (NINDS). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and NINDS under grant number TR002818. The content of this website is solely the responsibility of the BDCRC administrative coordinating center at Kennedy Krieger Institute and does not necessarily represent the official views of the NIH.

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